Patient and public involvement and engagement
PPIE means working with people to shape the research: what we ask, how we ask it and how we make sense of what we learn.
PPIE · Stakeholders · Advisory groups · Taking part in the study
Whose experience matters?
Crisis Narrative concerns nurses’ lives, careers and experiences of distress. People who have lived through these experiences, and those affected by them, can help identify questions and assumptions that researchers might otherwise miss.
Our planned involvement includes current and former nurses, people with personal experience of suicidal distress in healthcare, and family members bereaved by suicide. Academic experience is not required.
Dr Simon Walker leads this work within the Healthy Working Lives Group.
What contributors can influence
Questions and materials
Help decide which questions matter, review the language used in surveys and interviews, and make participant information clearer and more accessible.
Understanding the findings
Discuss emerging interpretations, challenge assumptions and identify where an account has been misunderstood or an important perspective is missing.
Sharing the research
Help shape public summaries, briefings and resources for practice. Contributors may also choose to take part in writing or public engagement activities.
How involvement will work
The planned Lived Experience Advisory Group provides a continuing route for this input. The intention is to involve contributors throughout the study and explain how their advice has affected decisions.
Before anyone agrees to a role, we will discuss the purpose, time involved, payment and expenses, accessibility needs, and available support. Contributors should be able to choose what they share and raise concerns about the process.
Advising on the research is separate from providing a survey response or an oral-history interview. An enquiry about involvement does not commit you to either.
Experience across the Healthy Working Lives Group
This work builds on the group’s wider approach to public involvement. HWLG hosted a PPIE conference in Glasgow on 20 February 2025, bringing researchers, practitioners and public contributors together to discuss participatory research.
HWLG’s approach to PPIE · University report on the 2025 conference
Interested in helping shape the study?
Please contact the team with a brief note about your interest. You do not need to describe a personal crisis in your first message. Support information is available independently of research involvement.
